Thursday, January 31, 2013

WE HAVE A DATE!!!!!

Oh My!!!  Oh My!!!  Oh My!!!!!

We Have a Date!!!!!

Lyla is scheduled 
for 
OPEN HEART SURGERY
 on 
MARCH 13th

OH THANK GOD!!!!!!!!!  








Hey God, Please stay close to me on March 13th!!!!!!

Love,

Lyla

xoxoxoxoxoxoxoxoxoxoxoxoxoxo

Wednesday, January 30, 2013

We can't guarantee she will survive

Today I read some old posts on our blog.  My oh my does it bring back some memories of our first few days in Ukraine for Lyla's adoption.  I did not share everything back then.

At our SDA appointment for Lyla Serge said to us "we can not guarantee she will survive and be able to go home with you".  He asked "are you sure you want to continue the process for this child?"  With absolutely no hesitation we both said "YES".   Then the SDA representative called the orphanage to make sure she was still alive and/or not in the hospital.  I was physically ill when she said that is what she HAD TO DO before giving us a referral!!!   After she confirmed Lyla was in the orphanage and "still alive", Serge said "it is a miracle every day that girl is living".

That is one of the memories that will never leave!!!!

This picture really captures all the emotion that was involved that day.  I can't even look at it with out tears streaming down my face!!!!  


Oh My, how things have changed drastically!!!!!!

The Director and Nurse were reading out of Lyla's medical file.  I didn't listen to a thing really.  I did not care about anything anyone had to say, I sure as heck didn't care about what was in her medical file.   I was holding my precious daughter and that's all that mattered!!!!!  Her life was starting that day, anything prior just didn't matter!!!!!

GOD IS GOOD

Good Results For Taylor

THANK GOD AGAIN!!!!  Tay's MRI/MRA was NEGATIVE!!!!!  Thank you so very much for the PRAYERS!!!!

She will still need to see a hematologist for her Protein S deficiency and a neurologist for the migraine she had but that is a piece of cake!!!!

Crazy Grateful today that my youngest and oldest are Stroke and Cancer Free!!!!

GOD IS GOOD


The above picture was taken the day these two met!!!!

LOVE


Monday, January 28, 2013

Results!!!!

We just got back Lyla's results from her surgery.  Just all kinds of Bacteria but that's IT!!!!!

OH THANK GOD

Thank you so very very much for the PRAYERS!!!!



Now poor Tay didn't have such good results.  She had some blood work done and it turns out she has a Protein S Deficiency.  Protein S helps the blood not to clot.  Taylor had what we thought was a migraine a few weeks ago but her Doctor thinks it was a stroke.  Now with this blood work it seems like it just might of been.  Taylor is having an MRI/MRA today.  Please keep her in your PRAYERS!!!!  Thank you So Much!!!!!


I sure do LOVE my GIRLS!!!!!!!

Thursday, January 24, 2013

Lyla is home!!


We left the hospital around noon yesterday!! This girl is the ultimate warrior princess. Look at these pictures of her in the hospital yesterday.



















I guess she forgot that she just had surgery and was in the PICU!!! She is something!!!

Sweet Belle wasn't impressed that Lyla came home and Gavin was obsessed with the bandages on her face. Lyla was annoyed with Gavin constantly staring at her. Here is the proof.





They crack me up!!!

Lyla slept well last night. She only woke up once when it was time for pain meds.

Today she is back to her normal routine.









She crawls so fast that I am not able to get a good picture.




Some walking with Nick!!


The best part of her morning was receiving kisses from her big brother!!!



Now we just wait for the biopsy results!! Please pray for GOOD results!!!! Thank you so much!!!

Wednesday, January 23, 2013

Update

Thank you so much for the prayers!!!
When the surgeon did the bronchoscope she found that Lyla has bronchomalcia, upper airway obstruction and laryngotrachial stenosis. Not sure if I have the spelling right on those??? And not sure if any of them mean the same thing. Lyla had some tissue removed and it was sent out to be tested for cancer cells. The surgeon said "with what we found today Lyla will need to stay in the hospital for a few days".
But then in true Lyla fashion only 2 hours after surgery she was drinking, sitting up, trying to crawl all over and she even ate, the surgeon changed her mind!! She then said "okay she can probably go home tomorrow"!!!! All the doctors and nurses can not believe how tough this girl is. They are amazed!!
Many of them have said "she is the best tonsil and adenoid patient I have ever had"!!!
Many have also said, "She is such a fighter"!!!!
My favorite is, "she is such a miracle"!!!!
Oh yes she is!!!! I couldn't be any prouder to be her Mom!!!




























Thank you so much for all the prayers!!! Obviously they are being answered and I am so grateful!!!

Tuesday, January 22, 2013

Walking Away!!

Look at my sweet girl waiting to go back for surgery!! I can't even tell you how much I LOVE this girl!!!



One year ago today I met that beautiful girl. Oh my she took my breath away!! I couldn't even believe she was right there in front of me. The little LOVE I had been head over heals in love with for two years!!! The angel I had been longing and aching to hold! I was in Heaven when the director said I could hold her that day. I knew as soon as I held her that I never wanted to let her go!! As a matter of fact everything in me said RUN, take her and RUN!! Oh my I didn't not want to leave her!! Obviously running wasn't an option but it was an overwhelming feeling. Instead, I had to turn my back and walk away!! Oh the PAIN was something I knew I would never forget.

Then I had to do the same thing today. The anesthesiologist went over all the serious risks with Lyla being under general anesthesia. Even though I knew all of this something about what she was saying STRESSED me right out. Then I had to do it again, just like last year, ignore the screaming in my head to RUN with her and turn my back on my sweet daughter and walk away.

I begged and pleaded with GOD last year to keep Lyla healthy until her family could come for her!! Never having a clue that we would be that family!! So GOD sure did come through on that one didn't He??? Well I have no doubt He will do the same today!!!

But I have to say, I HATE walking AWAY!!!!

Monday, January 21, 2013

Lyla Will Have Heart Surgery In March!!!!!

OH MY GOODNESS!!!!  We are all so excited to tell you that our very Beautiful Daughter Lyla will have heart surgery in MARCH!!!!!!!!!!!!!!!!!!!!!!!!  We found out today at her cardiology appointment!!!!!!!!

GO GOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

GO LYLA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!









Tomorrow Lyla will have her tonsils & adenoids removed and ear tubes inserted.  The surgery is "complex" the surgeon said due to her pulmonary issues!!!!

Lyla sure makes COMPLEX look real good, doesn't she????

Please keep her in your Prayers tomorrow!!!  It sure helps her Mama to know so many people LOVE her and will be PRAYING FOR HER!!!!  I mean it is PRAYER that placed that incredible little girl right there in our living room!!!!  WOW!!!!!  GOD IS GOOD!!!!!

Oh and guess what????  Tomorrow is the day that I met that precious treasure ONE YEAR AGO!!!!  Can you even believe it?????  OH MY!!!!

Yes, I am on my knees in awe and full of GRATITUDE!!!!!!

Monday, January 14, 2013

Where have we been????

Again, I am sorry it has taken me so long to blog!!!  Every day I swear I am going to and then......

So lots and lots has been going on.

First, Molly came to visit!!!  Okay, she came to work too!!!  Oh My she was BEYOND HELPFUL!!!  I am so grateful for all she did while here and I miss her something AWFUL!!!!  So do the babes!!!  Especially Gavin!!


We also have Molly to THANK for this AMAZING Before & After of Lyla!!!!


Can you even believe that is the same girl????  WOW!!!!!

Owen had ear tubes put in last week and he was so tough!!!  I was so PROUD of him!!!  Molly took this Awesome picture of Owen while she was here!!  Yes, Molly is a very talented photographer!!!


Sweet Sara was so sad when she came home from school to find that Molly had left.


As you can see, Sara LOVES MOLLY!!!!!

WE MISS YOU MOLLY CONLEY!!!!!!!!!
________________________________________________________________________________
Then Saturday two of my friends from High school came for a visit!!!  So FUN!!!  You know you picked good friends back in the day when 20 years later they sit in your living room with your large crazy family and fit in PERFECTLY!!!!



Saturday Night Lyla had a sleep study.



Sweet Girl was a Trooper!!!

Whats next for us?  Hmmm.  Not much at all this week.  WEIRD!!!  Next week is a big week.  Lyla & Belle have a cardiology appointment on Monday.  Lyla is having surgery Tuesday.  She will have her tonsils & adenoids removed and ear tubes inserted.  She will have to stay in the PICU for a night or two following the surgery.  Well, that's what they say but you know our girl and she always surprises everyone with how well she does!!!

Thanks so much for continuing to visit our blog even though the updates are scarce!!

Saturday, January 5, 2013

Tuesday, January 1, 2013

LOVE

I was so Blessed to witness an INSANE amount of LOVE in 2012!!!  

Looks like 2013 is going to be the exact same way!!!!!